Combining anthropological and biomedical perspectives and presenting real-world, practical advice from seasoned clinicians, family members with experience as caregivers, and longtime leaders in the development of policies affecting children with special health care needs (CSHCN); the editor's intend this book to be used as a basis for dialogue between families and professionals. It offers an essential discussion of ways to improve care for the children, examining what ?appropriate care? consists of as seen from a range of disciplinary and stakeholder perspectives. The first volume to gather contributions from experts on the subject in one place, this book identifies emerging trends and presents basic information about particular conditions to help summarize the state of thinking on the subject today, describe the agenda for the future, and prepare professionals and parents alike to meet its challenges.
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